Behind the Episode: An Advocacy Podcast by Cure AHC

Sigurður Hólmar Jóhannesson is the father of Sunna Valdís, who was born in 2006 and was diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna is the only person diagnosed with AHC in Iceland...

Spotlight Family Social Media Account: Abilities First Texas, by Katy Pipak Williams, Mom to EK who has AHChttps://www.instagram.com/abilities.first.tx/# FAMILY MEETING INFO:Virtual attendance is avai...

Welcome to Behind the Episode, a rare disease advocacy podcast by Cure AHC.  This podcast is about the families, the people, the science, the advocacy, the stories, the hope, and the strength that exi...

Welcome to Behind the Episode, a rare disease advocacy podcast by Cure AHC. Months ago, we gathered your questions as a community — and this conversation is where those answers live.This is a longer e...

In Episode 1, host Izzie Duval speaks with former Cure AHC President and RARE Hope co-founder Simon Frost and newly elected Cure AHC President Stephen Henderson about how their children’s AHC diagnose...